Words: How to refer to people with a disability

People with a disability are often described in the media using stereotypes. Stereotypes stigmatise groups who are depicted in this shallow manner and affect people’s lives. That’s why it’s important that we change the ways we talk about people with a disability to respect the person, and not make disability a focus of our attention. For community radio producers, we have the Code Of Practice to remind us to be careful about avoiding discrimination in our reporting:

We will not broadcast material that is likely to stereotype, incite, vilify, or perpetuate hatred against, or attempt to demean any person or group, on the basis of ethnicity, nationality, race, language, gender, sexuality, religion, age, physical or mental ability, occupation, cultural belief or political affiliation. (Code Of Practice s3.3)

Given this obligation, community radio producers need to attend to how their depiction of marginalised people might frame them as stereotypes. McRuer (2006) identified three main media frames that misrepresent the real life experiences of people with a disability: disability as tragedy, triumph over disability, and super-crip. Words are also a problem, especially as trends in the English language change so often. One of the great things about protest movements is their capacity to reclaim insulting and negative words for there own purposes.  Just as ‘queer’ has been reclaimed by the LGBTIQ+ communities, ‘crip’ is now common parlance amongst disability rights activists, declaring it is now it’s ‘hip to be crip’ and applying a disability lens to social and political issues as ‘cripping’ like the 2016 #cripthevote did during the US elections (Disability Visibility Project, 2016).

However, there are still lots of words that hurt and misrepresent, and some of them have a long pedigree in the news media.

Some research has examined what people with a disability think about the way they are depicted in the media. Johnson (1994) asked people with a disability what they thought of a range of words common used by news media to describe them. The words included “handicapped”, “disabled”, “wheelchair bound”, “victim”, “crippled”, “differently abled”, “handi-capable”, “physically challenged” and “person with a disability” (p.27). Few liked the term “handicapped” for its perceived reference to begging “cap in hand”, and that some had it imposed upon them by service agencies; but neither did they like “handi-capable”. The former was recognised as a word commonly used at that time in legislation.

“Disabled” was preferred for its lack of connotations of inability to function and that it was being embraced widely by the disability rights movement at that time, the typical way that social movements acquire nomenclature according to Johnson’s analysis (p.28). “Person with a disability” was perceived as putting the person first, although it was perceived as “awkward” to say with one respondent saying “journalists will never use it consistently due to length” (p.29). The claiming of terminology has a “liberating” function for one participant, who felt he was, “reclaiming my personhood from a society that had treated me as “less than” solely on how I walked”; Ten years later the participant was also comfortable with “disabled”…I am proud now to be  “a disabled person” …to have persevered” (p.29). Naming is a complex issue, but first and foremost it needs to be decided and claimed by the people it describes for it to be empowering.

Johnson notes that “physically challenged” gained ascendancy in the early 1990s amongst news writers, but people with a disability did not like the term, calling it “condescending” says Johnson, perpetuating the idea that disabilities are too confronting to deal with directly and need to be described by euphemisms and that the so-called challenges are actually problems that lie in the environment, not the person (p.31). A Google News search in September 2018 returned 67,000 results containing the term “physically challenged” in the title to describe a person with a disability, indicating it is still widely used by journalists.

Johnson notes that the phrase “wheelchair bound” was the subject of media activism by people with a disability in the mid-1980s, through appeals to publishers of style guides, and by directly ridiculing newspapers using it by sending them pictures of people chained to wheelchairs. But it remains persistent in the journalist lexicon, being used as recently as September 22, 2018 in the Sydney Morning Herald (O’Mallon, 2018), with 40 other occurrences globally on that day alone, according to a Google News search by the researcher. “Victim” has also been the target of activism, but remains in use in conjunction with disability in the media.

While media agencies like the Media and Arts Alliance, and the Australian Press Council make standards and codes, those paper tigers obviously aren’t affecting change if after more than 20 years, ‘wheelchair bound’ is still in use in the mainstream media. One  likely reason the Murdoch media still use sensationalist reporting of disabilities is because they sell papers to the curious, and as newspaper sales are in decline, we will see even more sensationalist ‘reporting’.

In 2017 Griffith University in Queensland began an advocacy journalism project Open Doors to improve the representation of people with a disability in the media by allowing journalism students to connect with people with a disability to help them gain a better understanding of the lived experience of having a disability (Valencia-Forrester, 2017). Read about that project at this link: https://projectopendoors.org/stories/

So what words are now ok?

To find out that, you need first to ask people with a disability.  If it’s in the context of an interview, ASK: how should I describe your disability?

Here are some substitutes:

Do say:

  • disability
  • people with disabilities
  • segregated school
  • seizures
  • needs
  • person with a spinal chord injury
  • person with autism
  • person with down syndrome
  • person of short stature
  • wheelchair user
  • has a learning disability
  • has a brain injury
  • blind, low vision
  • deaf, hard of hearing
  • intellectual disability
  • amputee, has limb loss
  • congenital disability
  • burn survivor
  • person living with (insert condition here)
  • post polio-syndrome, has (insert condition here)
  • service animal or dog
  • psychiatric disability
  • accessible parking
  • accessible toilet
  • ASK: how should I describe your disability?

Don’t say:

  • differently abled, challenged
  • the disabled, handicapped
  • special school
  • fits
  • special needs
  • cripple
  • autistic
  • mongoloid, retarded
  • midget, dwarf
  • confined to a wheelchair, wheelchair-bound
  • slow learner
  • brain damaged
  • visually handicapped, blind as a bat
  • deaf-mute, deaf and dumb
  • gimp, lame
  • birth defect
  • burn victim
  • suffers from polio (or any other disease)
  • Parkinson’s sufferer
  • seeing-eye dog
  • crazy, psycho, schizo
  • handicapped parking, disabled restroom
  • Rude to ask: What happened to you? because it’s none of your business

References:

Community Broadcasting Association of Australia. (2008). Community Radio Broadcasting Codes of Practice Retrieved from HERE

Disability Visibility Project. (2016). #CripTheVote: Our voices, our vote. Retrieved from https://disabilityvisibilityproject.com/2016/01/27/cripthevote-our-voices-our-vote/

Johnson, M. (1994). Sticks and stones:  The language of disability. In J. A. Nelson (Ed.), The disabled, the media, and the information age. Westport: Greenwood Press.

McRuer, R. (2006). Crip Theory: Cultural Signs of Queerness and Disability. New York: New York University Press.

Valencia-Forrester, F. (2017). About Project Open Doors. Retrieved from http://projectopendoors.org

List based on https://www.theindependencecenter.org/disability-etiquette-in-news-headlines/

 

How to write and report about disability: PWDA

“Your choice of language has an impact on the way people with disability feel and are perceived in society. It is important that you are aware of the meaning behind the words you use when talking to, referring to or working with people with disability. Disrespectful language can make people feel hurt, excluded and can be a barrier to full participation in society. ” _ PWDA

People With a Disability Australia (PWDA) is a national disability rights and advocacy organisation.

They have developed guides for journalists who want to write about stories that include PWD.

Guide to reporting: http://www.pwd.org.au/library/guide-to-reporting-disability.html

Language to use: http://www.pwd.org.au/student-section/terminology-used-by-pwda.html

Talking about disability the right way

In March 2018 Carly Findlay, appearance activist, was interviewed by veteran ABC presenter Jon Faine.  Faine, (whether out of nervousness, not knowing what to say,  or genuine beleif he was being funny) made some poor jokes referring to her appearance and likening Findlay to a halloween mask.

Findlay talks more about the incident on her blog here: http://carlyfindlay.com.au/2018/03/28/talking-microaggressions-with-jon-faine-on-abc-radio/

Jon Faine subsequently apologised.  Carly Findlay had already made this video for the ABC this about talking about disability, which she has shared in this blog post: http://carlyfindlay.com.au/2017/08/27/my-five-tips-for-journalists-and-editors-writing-and-talking-about-disability/

In it she says, “use empowering language” amongst other things.   She recommends inviting people with disability to tell their own stories, those stories don’t have to be about “how we got like this”.  She says ” Disability/disabled is not a bad word. Stigma is created when euphemisms like special needs are used.” and that you shouldn’t treat PWD like they are super jsut because they got “out of bed and (are) going to work”.

 

If you are unsure what to say when referring to a person’s disability,  take Tiffany Carlsons advice:  “always refer to the Golden Rule. The Golden Rule is beautifully simple – treat others as you’d like to be treated. Mutual respect. At the end of the day, this is the only tip you need.” (Huffington Post 2013).

Lastly, Findlay says, “Pay people to write.”  You can support her here: http://carlyfindlay.com.au/support-me/

Check out Tiffiany Carlson’s full advice here in the Huffington Post, it’s a few years old, but still salient:   https://www.huffingtonpost.com/2013/07/15/disability-etiquette_n_3600181.html